Huntington‘s Disease Symposium

Two Upcoming Events


Saturday, September 26, 2020


9:00 AM - 11:00 AM


Research Update


Dr. Lauren Seeberger and Dr. Rajeev Kumar


Saturday, October 3, 2020


9:00 AM - 11:00 AM


Keynote Speakers: Dr. Bruce Compas & Dr. Bonnie Hennig


HD Advocacy Presentation


These presentations are subject to change. We will communicate all changes via email to registered attendees and website updates. 

Register

2023 Huntington's Disease Society of America

Centers of Excellence Family Education Day

 Saturday, October 21, 2023 | 8:30 am – 2:00 pm
Bethany Lutheran Church Fellowship Hall
4500 E Hampden Avenue, Cherry Hills Village, CO


Co-presented by the HDSA Centers of Excellence at the Rocky Mountain and University of Colorado Movement Disorders Centers and the Movement Disorders Foundation, the 2023 Family Education Day features presentations by the region's leading physicians and medical experts on Huntington's Disease research and patient care:


  • Registration & continental breakfast
  • Advances in understanding Huntington’s disease and promising new therapies (Rajeev Kumar, MD, Rocky Mountain Movement Disorders Center, and Emily Forbes, DO, MS, University of Colorado Movement Disorders Center)
  • Social work in HD (Meghan Smith-Cunningham, LCSW Clinical Instructor, Neurology)
  • HDSA Advocacy (Phyllis Foxworth, HDSA Advocacy Manager)
  • Palliative care in HD + practical solutions for care partners (Christina Vaughan, MD, MHS)
  • Spiritual care for HD
  • Lunch and social engagement


The 2023 HDSA Rocky Mountain Family Education Day was underwritten in part through the generous support of the Huntington’s Disease Society of America, Teva Pharmaceuticals, Neurocrine, Genentech, uniQure, PicnicHealth, PTC Therapeutics, MassMutual SpecialCare and Rare Patient Voice.


Click here to watch the 2023 HDSA Centers of Excellence Family Education Day.

2022 Huntington's Disease Society of America

Centers of Excellence Family Education Day

 Saturday, October 29, 2022

Co-presented by the HDSA Centers of Excellence at the University of Colorado and Rocky Mountain Movement Disorders Centers and the Movement Disorders Foundation, the 2022 Family Education Day featured presentations by the region's leading physicians and medical experts on Huntington's Disease research and patient care:


  • Presentation on HD research and Q&A: Drs. Emily Forbes, , DO, MS (HDSA Center of Excellence at the University of Colorado - Anschutz Medical Center) and Rajeev Kumar, MD (HDSA Center of Excellence at the Rocky Mountain Movement Disorders Center)
  • Presentation on HDSA and HD Parity Act: HDSA President Molly Kokesh
  • Presentation and Q&A on mindfulness: Dr. Jennifer Medina (HDSA Center of Excellence at the Rocky Mountain Movement Disorders Center)
  • Presentation and Q&A on genetic testing: Marrisa Lafreniere (BS Instructor, Neurology, UC Health Neurosciences Center - Anschutz Medical Campus)
  • Presentation and Q&A on insurance planning: David Marks


Click here to watch the 2022 HDSA Centers of Excellence Family Education Day online!


The 2022 Rocky Mountain Huntington's Disease Family Education Day was underwritten in part through a generous contribution by Teva Pharmaceuticals. 


2021 Huntington's Disease Society of America

Centers of Excellence Symposium

 Saturday, November 13, 2021

Co-presented by the HDSA Center of Excellence at the University of Colorado Movement Disorders Center and the HDSA Center of Excellence at the Rocky Mountain Movement Disorders Center, sponsored by the Movement Disorders Foundation, the annual symposium features the region's leading physicians and medical experts on Huntington's Disease research and patient care.

Research Update, Part I, Emily Forbes, DO, University of Colorado Movement Disorders Center.

(Click here to view presentation.)


Research Update, Part II, Rajeev Kumar, MD, Rocky Mountain Movement Disorders Center.

(Click here to view presentation.)

Patient Care Support, Christina Vaughan, MD, MHS, MS
(Click here to view presentation.)

Cognitive Decline in Huntington's Disease, Vicki Wheelock, MD

(Click here to view presentation.)

 Saturday, May 15, 2021
Movement Disorders Virtual Symposium 

Parkinson's Disease Symposiums

Parkinson's 2.0 Be Your Best Self

 Saturday, August 29, 2020

Rajeev Kumar, MD

Rocky Mountain Movement Disorders Center

Topic: Recent Advances in Understanding Parkinson’s Disease and Emerging Therapies 

Mimi Castelo, MD

Blue Sky Neurology

Topic: Understanding Cognitive Change in PD: Beyond the Basics

Katalin Pocsine, MD

Frontier Neurology 

Topic: Parkinson’s Disease and Autonomic Dysfunction – An Update

Samantha Holden, MD

University of Colorado Movement Disorder Center

Topic: Understanding Cognitive Change in PD: Beyond the Basics

Drew Kern, MD

University of Colorado Movement Disorder Center

Topic: Treatment of Complex Motor Problems in Parkinson’s Disease

2020

2019

Parkinson's 2.0  Translating Science Into Treatment

Saturday, October 5, 2019
Sie Center, University of Denver 2201 S. Gaylord St., Denver, 80208 

Rajeev Kumar, MD

Rocky Mountain Movement Disorders Center

Topic: New clinical trials to slow Parkinson’s disease and improve motor symptoms based on recent scientific advances

Brian Berman, MD

University of Colorado Movement Disorder Center

Topic: Improving the Quality of Sleep: A novel approach to improving cognition and slowing neurodegeneration in PD

 Daniel Parades, PhD 

Knoebel Institute for Healthy Aging

Topic: New Directions in Parkinson’s Disease Research: Developing effective early diagnostic tools as well as new treatments to halt disease progression

Huntington's Disease Symposiums

THE HUNTINGTON’S DISEASE EDUCATION SYMPOSIUM

SATURDAY, OCTOBER 12, 2019
Knoebel Institute for Healthy Aging

2020
Huntington Disease

Family Education Days

 Saturday September 26th 2020

Speakers

  • Dr. Rajeev Kumar, Rocky Mountain Movement Disorders Center
  • Dr. Lauren Seeberger, University of Colorado Movement Disorders Center

Video Presentation

Dr. Lauren Seeburger

Presentation Topic: Research Updates from the University of Colorado Center of Excellence

Dr. Rajeev Kumar

Presentation Title: Research Updates from the Movement Disorders Foundation Center of Excellence


Item Link

 Saturday October 3rd 2020

Speakers

  • Megan Monsees, Vice President of HDSA Rocky Mountain Chapter 
  • Dr. Bonnie Hennig-Trestman, HD Reach, HDYO, Carilion Clinic 
  • Dr. Bruce Compas, Vanderbilt University, 

Video Presentation

Dr. Bonnie Hennig-Trestman

Presentation Title: Talking to Kids About Huntington's Disease

Dr. Bruce Compas

Presentation Title: Families Coping with Illness: Implications for Huntington Disease

2020

2019

THE HUNTINGTON’S DISEASE EDUCATION SYMPOSIUM

SATURDAY, OCTOBER 12, 2019
Knoebel Institute for Healthy Aging

Dr. Rajeev Kumar, MD

Rocky Mountain Movement Disorders Center

Topic: New Investigational and Genetic Therapies for HD

Daniel Paredes, PHD

Denver University

Topic: Basic Science Advances in HD, Prospects for New Therapies

Greg Jarvis

Rocky Mountain HDSA Chapter Rep

Topic: HD Advocacy- Why the HD Parity Act Matters!

Kate Greenly

Rocky Mountain Movement Disorders Center

Topic: Genetic testing in Huntington’s Disease

2019

2018

Dr. Rajeev Kumar, MD

Rocky Mountain Movement Disorders Center

Topic: HD RESEARCH - MOVEMENT TOWARDS A CURE

Luci Draayer

HDSA Center of Excellence

OPENING COMMENTS

Dr. Diana Bowling, PHD

HDSA Center of Excellence

Topic: PSYCHOLOGICAL ASSESSMENT AND CARE IN HD - DOES IT MATTER?

Dr. Rajeev Kumar, MD

Rocky Mountain Movement Disorders Center

Topic: HD RESEARCH - MOVEMENT TOWARDS A CURE

Luci Draayer

HDSA Center of Excellence

OPENING COMMENTS

Dr. Diana Bowling, PHD

HDSA Center of Excellence

Topic: PSYCHOLOGICAL ASSESSMENT AND CARE IN HD - DOES IT MATTER?
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